Just a short update to let you know what's going on these days....
Zeta's had another tough week. We've been working on heartrate and desaturation issues. She's basically been sleeping day in and day out or "passing out" or seizing. We're not exactly sure what is triggering some of this new activity, but she has had some upper respiratory 'crud' along with it.
As usual, we've been in close contact with Hands of Hope and they've been great!
Today we went to Charleston and met with a few of Zeta's specialists (one of which just happens to be her hospice doc). I can't tell you how incredibly blessed I feel when meeting with this group. They made some minor adjustments in her care....but beyond that - beyond that - they show us tremendously individualized care and support! They ask about home life, about the boys...about our thoughts, concerns and feelings..... they treat Zeta (and us) as so much more than just a patient. We've had some pretty tough conversations with some of them and they take much care in how we approach things. They always respect our feelings and they fight these battles with us!
Next time you're waiting five billion hours to see the doctor (admit it, it gets pretty tiring sometimes- I know I can complain about it just as much as the next person) just remember that your doctor is human too. That very doctor may be trying to save another patient's life or trying to comfort a hurting family...they have a lot on their plates too!
So, today is another day to be thankful.....thankful for doctors, nurses, and everyone else that helps the medical world spin....a day to be thankful for another day with our family!
"When you are grateful fear disappears and abundance appears." Anthony Robbins
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