Homesick

I miss the grass.  I miss the trees.  I miss the water.  I MISS HOME!

I'm so very thankful that my family is able to be here with me, but I really do miss home.  I've only spent 3 nights there this month. 

I shouldn't be complaining because there have been times that we've spent much longer away, but I think being so FAR away is making it a little worse.

I'm pretty sure  if everyone has to leave before Zeta and I get to, that I might really have a real 'spinning head' nervous breakdown.  Hopefully, that won't happen though....I have a feeling we may be able to leave sooner than expected!

We have been so very  blessed by the people here at Phoenix Children's (I believe they have gone above and beyond for us), and we are completely amazed at how well everything has gone, though I do miss the familiar faces at MUSC!

Zeta continues to do well.  We were moved to the regular floor this afternoon...which is a closer step towards home.  Maybe that's why I am getting so antsy.  They are continuing to monitor the diabetes insipidus.  Everything seemed to have leveled off and her sodium and specific gravity levels (just labs they're watching relating to the diabetes insipidus)  had been pretty stable for over 24 hours until the last set of labs this afternoon.  There was a little change (which was not completely unexpected) so they are still monitoring that. 

Other than that, it is all just a bunch of waiting and watching... and more waiting.  Neurologically, she is doing very well.  The neurology team is very pleased.  It's all just waiting to see how her body continues to adjust.

Daddy stayed with Zeta at the hospital today and Stevie and I took the boys out for a few hours. 

We finally found some green and some water!

This place is called 'Hole in the Rock'.  The picture at the top of this entry is the view from one side, and this is the picture from the other. It was really quite beautiful, but also VERY HOT!! Once we got to the top is was pretty BREEZY....but it's still not home!!!!

Stevie and I continue to be amazed by the outpouring of love from all of you!!  We have surely felt and appreciated the many prayers and acts of kindness throughout Zeta's life, but I will tell you that during this, our latest battle in Zeta's fight, there has been such a cascading effect.  We could spend the rest of our lives trying to thank every single person involved in the complete showing of compassion ....and love and prayers..... and it would still never be enough....NEVER!  I cannot possibly explain to you how it feels to be on the receiving end of all the support we have been given.  It has truly taught me a whole lot more about compassion and giving.

When looking at this picture, taken  today, I find it kind of ironic....see how tiny our boys look..."like ants," Steven said.  A lot of times that is how I feel.  Like this lost  soul living this great big life.  Sometimes I am crushed by the seeming absurdity of it all....other times my breath is taken away by how much people care.  Either way, I get this sense of not being able to breathe.  On the one hand I feel as though our family could not possibly endure any more heartache...and on the other.....well, on the other.....I still cannot comprehend how our family is deemed worthy of so much from others when we have done nothing to deserve all that we have been given.  That is where I know God is at work....we are promised great blessings....if ..... IF...we are willing to receive them.  We have done NOTHING to DESERVE what the LORD continually blesses EACH of us with.  I should need no greater reminder of that than every morning that I awake and am able to kiss my 3 beautiful children!

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“What makes humility so desirable is the marvelous thing it does to us; it creates in us a capacity for the closest possible intimacy with God”

Monica Baldwin