Home again!

Stevie found this in the paper and left it out on the table for me last night....

talk about encouragement LOL!

Sometimes you have to resign yourself to find some humor regardless of your situation!

We came home yesterday.  Zeta had a good night and seems to be having shorter periods of agitation.  We haven't seen any seizures today and right now she is resting.  We never found a clear answer as to where the pain was originating and all the blood from her trach seemed to resolve on its own.  They increased one of her seizure meds and sent us home with some pain meds....so from all of that something seems to be working!  I'm anxious to hear input from the BNI team regarding their thoughts on the seizures.

I want to thank everyone for their continued prayers and support and all of your words of encouragement.  We are continually humbled by the kindness we are shown! Our families, friends, acquaintances and even strangers have made this difficult journey much easier to travel.

We're thankful for the wonderful medical support we receive.  We're thankful for our home nurse, for Hands of Hope, all of Zeta's specialists and hospital doctors.  It still amazes me how much Zeta (and our whole family) is treated with true care and concern. I'm sure in makes a huge difference in how we are able to handle things.  Zeta's hospital nurses and RTs were as sweet as ever. They all worked hard to help us muddle through Zeta's pain....Anna and Chuck were especially helpful and empathetic:)  They have an "APPLAUSE AWARD" at MUSC.  There have been a couple of times that I've attempted to nominated the whole ICU and PICU, but I'm not sure whether or not they accept those nominations because it seems to be an individual award..... so I'm going to make it my goal to try to eventually nominate each nurse, therapist, and doctor that has worked to make our lives better.  They deserve it! I can only express sincere gratitude for the  outstanding care that we consistently receive!

So....we're home.....and we'll continue to work to make life as comfortable as possible for Zeta.....and to strengthen our bonds as family.  Thank you for keeping us in your prayers!